Tuesday, July 11, 2006

We are home

We drove to New Orleans last night and got to the hospital at 6:45 this morning. Drew was admitted and had bloodwork and x-rays done before she was going to go for the cath. Dr. Bob came to get us to sign the consent forms and I told him all what Drew had gone through. He was very troubled and ended up cancelling both the cath and the surgery. He said the cath would have been okay to do but there was no point in putting her through the stress when it wasn't necessary until a few days before surgery.
His biggest concern was that she lost 1 pound and 3 ounces in a week and a half, which is basically 10% of her body weight. Can you imagine yourself losing that much weight in only a little over a week?????
What we did not know and now do is that when she had diahrea (sp?) we should have stopped the Lasix (a dieuretic). That just made her lose weight even faster. It had crossed my mind a few days back but let it go b/c the ER doctor and her pediatrician did not saying anything about stopping the medication. Just goes to show you should always listen to your instincts.
We are now scheduled to go back to New Orleans on August 21 for the cath and the 22nd for the surgery. That was the soonest they had avaiable. For this next month we will not be getting out of the house with Drew very much it is too risky with all the viruses roaming around town.
Oh and her party will not be till October. :( I don't want to chance her getting sick if we do a party before the surgery and recovery is 6 weeks. Which this is the least of our woories but thought I would let you all now since my last post was about her party.

Thank you all for your support and prayers. We love you all!

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