Sunday, March 26, 2006
Wednesday, March 22, 2006
Update
Steve got a call from Dr. Bob yesterday. He had changed around some of her meds Monday and called to say to change them back. He talked to her cardiologist Dr. Dalal here in town and she wanted her put back on the meds.
Anyway, Dr. Bob said that she is in more congestive heart failure right now then she was before. Which is news to us b/c every visit we go to they say she looks great and good etc. Which means surgery in a month or 2. So unless she starts gaining lots of weight really soon she will be in surgery in a month or two. I am not ready. She really looks like she is normal and healthy. I just dont get it. They said she may look good now but when it hits her it will be fast and they want to do surgery when she is healthier rather than when she is sicker. Why does my baby have to go through all of this? I just want to have a normal life. I mean we knew she would have to have surgery in 3-6 months but that seemed so far away. And then there is the whole thing with how well she can handle surgery. We almost lost her in this last surgery.
My heart is so heavy.
Please pray she starts gaining weight really fast.
Anyway, Dr. Bob said that she is in more congestive heart failure right now then she was before. Which is news to us b/c every visit we go to they say she looks great and good etc. Which means surgery in a month or 2. So unless she starts gaining lots of weight really soon she will be in surgery in a month or two. I am not ready. She really looks like she is normal and healthy. I just dont get it. They said she may look good now but when it hits her it will be fast and they want to do surgery when she is healthier rather than when she is sicker. Why does my baby have to go through all of this? I just want to have a normal life. I mean we knew she would have to have surgery in 3-6 months but that seemed so far away. And then there is the whole thing with how well she can handle surgery. We almost lost her in this last surgery.
My heart is so heavy.
Please pray she starts gaining weight really fast.
Monday, March 20, 2006
Weekly update
We had Drew's appt. today with Dr. Bob. He changed around some of her meds which was good for me. I now don't have to worry about giving her one of her meds at 6 am. He said she looks great and was very social. She is not gaining weight so hopefully by changing the meds she will start to gain now.
She is doing great!!! She has started to roll over alot more and is even sitting up on her own for a good while. Her feeding are still the same, she does LOVE to eat her baby food. If she could do without the formula she definately would and have no problem with eating just baby food. :)
Still no word on when her next surgery would be it is just another waiting game.
She is doing great!!! She has started to roll over alot more and is even sitting up on her own for a good while. Her feeding are still the same, she does LOVE to eat her baby food. If she could do without the formula she definately would and have no problem with eating just baby food. :)
Still no word on when her next surgery would be it is just another waiting game.
Monday, March 13, 2006
Weekly update
No appointments this week.
She does feel like she is getting heavier so it will be nice to see how much she weighs next week.
She has an appointment with Dr. Bob on monday. He does clinics in Lafayette once a month and we were able to get an appointment.
I will update next week.
She does feel like she is getting heavier so it will be nice to see how much she weighs next week.
She has an appointment with Dr. Bob on monday. He does clinics in Lafayette once a month and we were able to get an appointment.
I will update next week.
Wednesday, March 08, 2006
Tuesday, March 07, 2006
Weekly update
Since not much is going on with Drew right now, thank goodness, I am going to post once a week.
She had her Pediatric Cardiologists check yesterday. She looked great and she gained 5 ounces in 2 weeks. Not much but it is something. She is finally staring to get a bit of her voice back and the coughing has subsided. She is also back to sleeping all the way through the night, YAY!
I will try to post some pictures today or tomorrow.
She had her Pediatric Cardiologists check yesterday. She looked great and she gained 5 ounces in 2 weeks. Not much but it is something. She is finally staring to get a bit of her voice back and the coughing has subsided. She is also back to sleeping all the way through the night, YAY!
I will try to post some pictures today or tomorrow.
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