2nd major surgery scheduled

I talked to the surgeons yesterday and they have Drew scheduled to repair her VSD (hole in her heart). It is set for January 23, 2006. It is not set in stone. We have to go and get a heart cath done in New Orleans sometime in December. It is an in and out procedure so no staying overnight. YAY!!! SO, if the heart cath presents no more problems and she gains the weight she needs to then we will keep the surgery date.

Drew is adjusting great!

This pic was on the way home from New Orleans.



I asked Rylie to please put Drew's socks in her room and this is where I found them a few minutes later.






















Drew stares at Rylie all day long, she loves her big sis.
She sleeps ALL night long and is pretty laid back like Rylie was at her age.

WE ARE HOME!!!!!!!!!!!!!

Drew was released from the hospital yesterday!
The two docotrs came in yesterday and asked Steve and I when we would like to go home and we looked at each other and both said NOW at the same time. LOL
We wasted no time and got out of there before they had a chance to change their minds. :)
The clot is still there but they are not concerned about it at all. It will be removed when she has her next surgery at the beginning of next year. We have about 2 months of being at home and then we have to head back to New Orleans. Oh well we will enjoy every second of her being at home till then.
Thank you to everyone for all of your prayers and support which got us where we are today. We love you all Thank you!

G-Tube

Drew had surgery yesterday.... Everything went well. She was in some pain last night and throughout the day. They will try to feed her tomorrow and hopefully give us an indication when we can go home.

We look forward to enjoying out little miracle at home for the holidays before we go through her final surgery early next year.

Thanks for your prayers and support...We will keep you posted.

surgery cancelled

Well only until monday.
This past monday we gave the doctors the go ahead to do the surgery for the g tube.
Well since she was on asprin they could not do it till yesterday. They came to get her and shortly after that they told us that there was a scheduling problem and we would have to wait till tomorrow.
We wake up this morning at around 7 to get ready for her surgery. At 8:30 we still had not heard anything. Mind you they stopped her feedings at 1 am this morning so she was not a happy camper. Well the nurse calls surgery and they said she wasn't on the schedule till 3 pm. Umm.....Hello people she has not eaten since 1 am. So they decided to feed her at 9. We waited all day again she was starving come 3 o'clock. The doctor comes in at 4 pm and says they can't do the surgery today b/c surgery is backed up. I almost hit the roof! The only reason we are still here is to get that surgery. The surgery is for Monday now b/c they don't do them on weekends. The doctor mentioned maybe tomorrow if they can get the staff here but that probably won't happen.
Sorry for the vent but I am just so frustrated and ready to move on.

We moved

Drew was moved to pediatrics on the 6th floor. She is no longer hooked up to monitors, which is a good thing but made for a very restless night for Steve and I. LOL She has her own room where Steve and I can stay with her 24/7.
She is still not eating very much at all, only around 10 cc's each time.
On Monday the doctors are going to take the next step which is probably going to be inserting a g-tube. That way we can go home alot sooner. They said if she was close to taking in all of her feedings they would let us go home with the tube in her nose. Since she is not we will have to have the surgery done to get a g tube put in. We keep battling in ours minds on if this is the right decision or not. I hate to put her through another surgery (very minor surgery) but it may just have to be done.
Please keep her in your prayers and pray that we make the right decision.